CHILDREN'S CRANIOFACIAL ASSOCIATION
The Children's Craniofacial Association (CCA), ccakids.org, is an organization that helps kids with facial or cranial (head) disorders. This organization provides many services to these kids, including hosting a retreat for families of those with facial deformities. Many kids with Apert Syndrome attend in order to recieve support and love from the CCA community.
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CCA’s Annual Family Retreat & Educational Symposium is held each June to provide individuals affected by a facial difference, their siblings and parents an opportunity to interact with others who have endured similar experiences. The unique weekend retreat allows families to share ideas, problems and solutions and make life-long friendships. The weekend kicks off on Thursday with an Educational Symposium and the rest of the weekend allows time and activities to build new relationships and bonds of understanding and caring, which will lend support through both difficult and good times in the future." -ccakids.org
CRANIOFACIAL FOUNDATION OF AMERICA
The Craniofacial Foundation of America (CFA), craniofacialfaoundation.org, is an organization designed to help those with facil differences have normal lives. The association uses research, evaluation, and training to provide emotional and financial aid.
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Alex's life has been changed forever by the incredible skills and generosity of the Tennessee Craniofacial Center and the Craniofacial Foundation of America. Dr. Sargent's ability as a surgeon has improved the quality of life for Alex and will never cease to amaze us. The Craniofacial Team consists of gifted professionals that have met all of Alex's needs including speech therapy, audiological, orthodontic, and surgical repair. Over the past eight years, we have developed a wonderful relationship with everyone involved in Alex's care." -CFA patient's (Alex's) mother